So I’m home from City of Hope. I really like their approach, the people, and their dedication to research.
I had a PET scan done on Tuesday and went over the results with the Oncologist this morning.
Apparently, the Niacinamide, Thiamine, Biotin & Aspirin protocol had negligible effect… the same spots that showed up in the MRI over the summer lit up on the PET. Luckily, nothing showed up in the Lungs, but there was a small lesion that lit up in my liver.
The oncologist said I should focus on my liver first. He suggested this new treatment called Histotripsy. It uses high frequency ultrasound and does not damage any surrounding tissue. Luckily, they have it at the University of Michigan (where I’ve had surgery and radiation before) and I believe I would qualify.
As far as treating the existing head and neck tumors – I have a few options.
1: Clinical trial at Memorial Sloan Kettering using AVA6000 – a novel new targeted chemo drug that is effective on head and neck cancers but has a much lower side effect profile.
2: Use my existing DNA information (from 6 years ago) along with the new genenetic test results from Sloan Kettering, to find new genetic markers/oncogenes that may be targeted in clinical trials
3. Continue with “alternative/functional” treatments. I’ll probably try baking soda treatment – direct aspirin or acetic acid injections into tumors, Altitude tents, and others.
Thanks for staying with me on this journey… as always, your input and support is appreciated!
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